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This is a public, open group for anyone to join, add events, upload documents and recommendations that are useful for Multiple Myeloma patients.

This is a wiki style group which will only become more useful as more people share and participate. Please join and participate!

Information

  • Public, Open Access
  • All Journey Phases; Multiple Myeloma
  • Multiple Myeloma Group
  • www.navigatingcancer.com

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Hi, I'm David P B.
Phyllis, I'm pretty sure you have to be in remission before a stem cell transplant is considered. Ask your Oncologist. Ask lots of questions! Crafts, hobbies and working in the yard are great -...
5
  • Sat Feb 16, 2019 ·
Hi, I'm Bruce R Z.
I am looking for others diagnosed with Multiple Myeloma and also with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy, an Autoimmune disorder). I was diagnosed with Multiple Myeloma in S...
1
  • Mon Dec 10, 2018 ·
Hi, I'm Connie W.
Hi Everyone. I had my SCT 12/21/18. Was in the hospital until 2/4/19. They told me my numbers looked good or they would not have released me. I understand the first 90-100 days after /transplan...
8
  • Sat Feb 23, 2019 · Like2
Connie, this is Catherine. What would you like to know? you can contact me directly at my email cbennett@dickinsonwright.com
3
  • Mon Apr 9, 2018 ·
I had the same treatment as post #1, but I elected to have the stem cell transplant last September to make the remission longer. So far I am doing well my counts are good and I only take 10 mil of...
19
  • Mon Feb 19, 2018 · Like2
Hi, I'm David P B.
Wow, your kidneys starting to work again does sound like a miracle, along with very good work by your Doctors! My kidneys were about to shut down from too much calcium in my blood when they first ...
4
  • Fri Apr 14, 2017 · Like1
Acrobat
Uploaded Feb 22, 2013
Caring for someone with multiple myeloma can be a challenge. Caregivers need to know what to expect, but they also have to care for themselves so they’re better prepared to support their loved one... more
Recommendation
Updated Oct 5, 2010
This program matches newly diagnosed multiple myeloma patients with trained cancer survivors of the same diagnosis. The survivors meet with patients and answer questions, instill hope and relate to... more
Recommendation
Updated Aug 12, 2009
A PDF of national guidelines in the USA
Recommendation
Updated Aug 12, 2009
Susie is a MM caregiver in the UK who has an inspirational blog of poetry chronicling her husband's journey with Multiple Myeloma.
Recommendation
Updated Aug 12, 2009
A wonderful explanation of the Free Light Chains that are monitored in Multiple Myeloma.