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  • Public, Open Access
  • All Journey Phases; Myelodysplastic Syndrome
  • Myelodysplastic Syndrome Support Group

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MDS

Hi, I'm Charles T M.
Yes
1
  • Sun Nov 17, 2019 ·
Hi, I'm Alex W.
I was diagnosed with megaloblastic anemia in 6/17 and after bone marrow biopsy with MDS in 12/17. I do not have del5q. I've had weekly shots of 60,000 units Procrit for 18 months which kept my RBC ...
4
  • Sun Jul 28, 2019 · Like1
I'm JoMac53, and I'm a survivor of Myelodysplastic Syndrome
Hello. Is this an active message board? My name is Jo and I have MDS-EB1. Going for eval by Rutgers Cancer Institute of New Jersey (RCINJ) transplant team at Robert Wood Johnson (RWJ) New Brunswick...
1
  • Thu Apr 12, 2018 ·
Hi, I'm WILLIAM H.
I have had MDS for 1.5 years. I have yet to locate an MDS support group in Georgia. Yes I know that there are some national groups and some web groups. I am exploring the possibility of orga...
1
  • Sun Feb 7, 2016 · Like1

CC

Hi, I'm LARRY A H.
I apologize for the delayed response. My WBC is 15.1, RBC 5.9, Hemoglobin 16.1. Counts in these general regions are what gave rise to my bone marrow aspiration. My hematologist has encouraged me...
7
  • Mon Nov 18, 2019 · Like1
Hi, I'm Barry P H.
Now that your results showed "remission", how did this affect your schedule of vidaza? Did you get to go longer than 4 weeks before you had to begin your 11th dose?
5
  • Tue Jul 26, 2016 · Like2
Recommendation
Created Nov 28, 2012
We found this useful when talking with the doctor.