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Hi, I'm Lisa

I’m posting for my wife who has undergone various treatments for breast cancer over the past 6 years, chemo, surgery, radiation and hormone suppressants. She was cancer free for 5 years and was diagnosed with a stage IV metastatic several months ago, with spread to lymph nodes and several areas of bone. She is now on iBrance and flauvascent and significantly struggling with side effects.

Beyond fatigue, she is having a very difficult time eating, with nausea, early satiety (fullness), bloating and just feeling like she can’t keep anything down. Her oncologist suspects Gastroparesis and has prescribed Reglan which we have decided not to take due to side effects and warnings regarding long term use beyond 12 weeks.

Is any one else struggling with this. Any advice?

  • Post #1
  • Sat Feb 9, 2019
Hi, I'm AG girl
I had horrible reactions to Ibrance and dropped 45 pounds in 60 days

I had to get off of it after the first month. Couldn’t eat or swallow. Nurse practitioner couldn’t understand. I believe because they don’t want to
I highly recommend you get your wife on RSO (YouTube it)
I was stage IV Mets to my bones
they’re gone

  • Post #2
  • Sat Feb 9, 2019
Hi, I'm JOANN M S.

Just adding comments regarding Gastroparesis. Diagnosed with stage 4 small intestinal cancer in April 2018 and had 5 treatments of chemo before surgery and 6 after. Gastroparesis went away after surgery to remove mass in small instestine. Was informed early on that Gastroparesis is a sign or condition of something bigger. Fought this condition for almost a year until the mass was located in my small intestine. Just warning that patient may want to push endoscopic procedures to be sure no blockages. Good luck!

  • Post #3
  • Sun Feb 17, 2019
Hi, I'm Donna M M.

Yes finally after a year and January 9 Surgery it was a big mass and small intestine blocked.I was always getting sick no matter what I ate and 94 lbs is all I weighed. Now finally able to eat and bowels moving. No one understood what I was going through Nurses at Hospital or E R thought all I wanted was pain medication after 5 er trips and hospital stays quit going to hospital. But better now:

  • Post #4
  • Mon Feb 18, 2019
Hi, I'm Lisa

Can you let me know how the masses were identified. Scans? Endoscopies?

  • Post #5
  • Thu Feb 21, 2019
Hi, I'm JOANN M S.

Eventually had an endoscopy where my doctor said he was going to continue down through stomach and duodenum into small intestine as far as he could go, which he did until the mass was located. He knew he would find something at this point.

  • Post #6
  • Mon Feb 25, 2019
Hi, I'm Lisa

Many thanks for the feedback.

  • Post #7
  • Tue Feb 26, 2019
Hi, I'm Donna M M.

My colonoscopy Doctor scheduled surgery so I could get my colan surgery found the mass so now I am better but still one more surgery to to put colan back together and get bag off and have a normal life again.

  • Post #8
  • Wed Feb 27, 2019
Hi, I'm Pam T

I had squamous cell esophageal cancer In January 2015. 36 rounds of radiation and 5 chemo treatments. I could not eat and had a peg tube. Unfortunately the tube kept leaking and finally came out on it’s on after 6 surgeries to replace it and to try to fix the hole it left. I ended up being fed by TPN for months by my port, which finally got staph and had to be removed. I slowly relearned to eat and got my voice back. Then about a year and a half ago, I started having problems swallowing meats and breads. This past October, I was diagnosed with gastroparesis, esophillic esophagitis, a motitalty disorder, and dysphasia. Apparently all from the radiation. Now I have so many food restrictions, there a very few things I can eat. I was sent to the Mayo Clinic in Jacksonville by my local gastro. The doctor down there is the one who diagnosed me with most of this. She did a EDG in January and injected Botox. So far, it seems to have helped a bit with the pain. Keep pushing your doctors. Good luck!

  • Post #9
  • Sun Mar 3, 2019
Hi, I'm Donna M M.

Yes! Ty!! I think it is fixed now able to eat and going to bathroom a lot can’t keep up with my bags. Hope now soon repair my colan and go from there and also gained 4 lbs 2 months

  • Post #10
  • Tue Mar 5, 2019

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